Saturday, February 13, 2010

Our Side of Drama

Well - round two at the hospital is over - for now! What an experience all of this is becoming!! We arrived at the hospital right at noon and were immediately directed to a private room in the sedation department. Numbing pads were placed on JD's feet to prep for the IV. The Child Life Specialist and her intern began explaining the projected timeline for the rest of the afternoon & the sedation doctor then came in to ask us questions regarding JD's health history and to examine him for the procedure. She explained to us the risks and benefits of sedation - it really makes you not want to do it when you hear all that!!! They placed the IV - which was extremely traumatic for JD - and then we headed down to Radiology.
Once in Radiology JD was placed on a stretcher and the real "fun" began. He started getting hooked up to all sorts of monitors, tubes, etc. It's a good thing I knew this was a somewhat minor procedure or otherwise seeing him like that would have scared me! Once they began giving him the sedation meds he began to fade fast! He fought it for a while and then could hold off no more! He gave in to the powers of the med they call "magic milk". Once he was sedated, the doctor realized we hadn't signed one of the consent forms yet. They took us into another room so the US tech could go over the form with us and we discovered the particulars of the procedure. For the first time we throughout this ordeal we were told the full truth! The point of this procedure was only to draw enough fluid to send to the lab. I explained to the tech that the ENT specialist had said they were going to drain this completely and that would hopefully resolve the problem. This wasn't the case! She said they would get as much fluid as possible but that was the main point.
They finished the procedure and called us back into the room as they were waking JD back up. I asked the Radiologist why they couldn't use the fluid they had already withdrawn back in January. The Radiologist said she had never been told they had done the Fine Needle test. I was furious!!! Evidently the ENT specialist didn't see the point in sharing ALL information with the radiologist - so now we are paying for a test that was done a month ago, that we didn't get any answers from! I went off! I explained to the doctor the seriousness of this situation and how we had specifically explained our finances to the ENT doctor. Evidently they completely ignored everything we said.
When JD was moved to recovery in the AMU I called our pediatrician and expressed my concerns. I asked if the follow-up could be done through the pediatrician's office instead of the ENT. I explained that I am furious with the ENT and don't feel that we are getting treated fairly by him or his office. The pediatrician has said that they're going to try and work it out that we can follow-up with them. Yay for small victories!!! The test results should be back on Tuesday so we should find out sometime after that! Please keep praying that somehow this will just heal on its own. We're already being billed for services being rendered that we never should have and still have no answers. GOD's still in control - we know that! Now we just have to be patient! Please keep praying!

In His Hands -
Jeremiah, Crista, & JD

Friday, February 12, 2010

Peace in the Midst of....Wherever We Are

Well, today we will be going to the hospital for "round 2" of this crazy mess. We do not know what's going to happen or if it will be good or bad news. I'm praying that the fluid will have thinned enough that they can do the procedure. I can't imagine going through this a THIRD time. I know that GOD already knows the outcome and we are trusting HIM to take care of our little man. This is most likely going to be a very long and emotionally trying day! But I know we will come out of it ok. We have friends and family around the country praying for us and those prayers are not in vain. GOD is a GOD of mercy and even though it may not be the outcome we hope for it will be what is best for us and what brings the most glory to GOD. We know that we are in HIS hands and that is the safest place to be. Please pray that the doctors have wisdom as they determine the next step in treatment. Thank you - from all three of us! GOD is good all the time...

In His Hands,
Jeremiah, Crista, & JD

Tuesday, February 9, 2010

Off to the Hospital - Round 1

This morning I called the ENT office to find out when the ultrasound procedure was going to be. They were supposed to call me yesterday and I never heard anything. The nurse said she needed to check on it and would call me back. The next half hour was spent talking to the ENT nurse and the pediatric sedation nurse. They were trying to get the kinks worked out and get us scheduled. The called at 8:50am and said we had an appointment at noon. They told me JD couldn’t have anything to eat or drink after 9:00am. The only thing I was allowed to give him for the next 10 minutes was apple juice. Try explaining to a 21-month old that he can’t eat or drink! I took JD to work with me for an hour then we headed to the hospital. We had to get there at 11:00am to get him checked in, the IV started, etc. We got there at 11:00am got checked in and headed to the Pediatric dept. They had a liaison who explained the steps we would go through and helped us better understand the procedure. They started getting JD prepped and asked if he’d already had a CT scan. We told them no. They left the room and came back a few minutes later and explained that they don’t like to take the risk of sedation without knowing for sure there’s something in the lump that needs to be extracted. They decided to do an ultrasound first. We headed downstairs to do the ultrasound and as soon as we entered the radiology department one of the radiologists said that JD needed to be on a stretcher first. The sedation nurse we were with explained he was outpatient and didn’t have a room. The radiologist and nurse then began “arguing” back and forth as to what needed to be done. The radiologist said we had to have a room for JD to “recover” in after the biopsy. They finally worked something out and we went on to the US room. We waited for a few minutes before the tech came in. She said she was going to go ahead and do the US and get that out of the way. JD was PERFECT throughout the US. He sat so well for them! I was so proud! They said they’d never had a 21-month old behave so well! *That’s my boy!* After the US we waited for quite a while for the doctor to come in to do the procedure. While waiting the nurses, sedation team, and US techs were discussing that our specialist’s office had tried to “short-circuit” the system in the way they’d scheduled the procedure. They didn’t go through the proper channels and that’s why this had been such a confusing mess (having to do an extra US, having no bed to recover in, etc). When the doctor finally came in she informed us that there was definitely quite a bit of liquid in the lumps but that it was too thick to be extracted. She said that we needed to wait a few more days for it to thin out and then we’ll have to come back and do this procedure. I was so frustrated with the ENT office. We went through a stressful day all because they tried to take shortcuts. So, we still have no answers but at least we got some information from the doctor at the hospital that really made us feel better. It was nice to get a second opinion and to feel secure in their decision. So now we go back on Friday @ 11:00am and get to go through all this again.
Please continue to pray for all of us. We are trying to remember that GOD is in control of the situation. We know that HE is but it’s hard to keep that in our focus sometimes. It’s so easy to say it when everything’s going great but our faith is being tested right now! We are so thankful for your continued prayers! We aren’t through this yet, so please keep praying! We’ll keep you posted!

In His Hands-
Jeremiah, Crista, & JD

Monday, February 8, 2010

UPDATE ON JD


Here is the best shot we could get of the lumps on JD's neck. The first one (under his ear) is the worst. The second one (kind of under his chin) isn't quite as large and is definitely not as red. They both look bad though!
JD’s follow-up appointment was supposed to be January 28, 2010 but we got a call from the doctor’s office the day before telling us that we had to reschedule because our doctor was going to be in Haiti. They scheduled us for this morning (February 8, 2010) at 8:45am. We got there early (I know – I was shocked we were early too, Tiffany! ) and we waited until about 9:00am before they called us back. Then we waited another 20 minutes until the doctor came in. The doctor came in only it wasn’t Dr. Albernaz – it was a medical resident. (*yay*) She asked me a bunch of questions about what had been going on (when it started, symptoms, etc). I explained that the antibiotics he’d been on were supposed to clear up the infection and shrink/heal the “lumps” but they’ve gotten bigger! After she got all her info she went out in the hallway to “confer” with the specialist. Then the door opened and in came the specialist, and not one but TWO of the wonderful residents!
Dr. Albernaz examined JD and asked me some more questions. He then said that he thinks our next step will be to have an ultrasound done on his neck to examine the lumps. They’re also going to use a needle to aspirate the lumps while doing the ultrasound so they have a guide as to where the needle is going. JD will have to be sedated during this procedure – the doctor was surprised that I knew what sedated meant. Guess he thinks it’s an uncommon word?? He put JD on the same antibiotic – that didn’t do any good the first time – and said we’ll try another round of antibiotics. After the ultrasound and aspiration we have to go back to the specialist again! Clearly he thinks we are made of money!! Anyway- it’s very frustrating because we still do not know anything. Please keep praying for healing for JD and for patience for me! Our insurance isn’t covering any of this so every time they’re dragging it out I panic a bit! It’s my child’s health and I’d do anything for him but you all know what I mean. Doctors don’t always think about the most cost-effective method for their patients. Anyway- thank you for your continued prayers. The ultrasound/aspiration is supposed to be this week so hopefully I’ll have more news soon.

Monday, January 18, 2010

A DAY OF PRAYERS FOR JD

GOD is amazing and we are so very thankful for HIS work in JD this week!

As most of you know, JD is our son. He’s 21 months old and just a riot to be around! On Thursday afternoon, January 7, my friend (and JD’s sitter) Tiffany called me to see if I had noticed any swelling in JD’s glands that morning. I told her I hadn’t noticed anything and then asked why she was asking. She said she hadn’t noticed anything that morning but then that afternoon when he went down for his nap she noticed two goose-eggs on the left side of his neck and a smaller one on the right side. I wasn’t sure what it was so I called the phone nurse at our pediatrician’s office. I briefly explained what Tiffany had described to me. I asked what it could be and if I needed to bring JD in to the office. The nurse said since he wasn’t running a fever and had no other symptoms she recommended I give him some allergy medicine for the next few days and just keep a close eye on him for any other symptoms. She said when children get colds or have sinus trouble it can back up into their glands and cause them to swell. This is most likely what was wrong with JD!
I watched him all weekend and gave him his "daily regimen" of allergy meds and there wasn’t any improvement. I had called the nurse back Friday just to get some more advice as to what we could do and she said if there is no change by mid-next week or if they’d gotten bigger, she recommended I bring JD in to the office. My mother-in-law brought me some Amoxicillin Saturday that one of my nephews had just gotten but was allergic to so couldn’t use. I started him on that Sunday thinking if it was an infection that would take care of the problem.
I kept a close eye on JD all week! I looked up “swollen glands” on WebMD, Baby.com and in the medical book I have at home. They all listed a ton of things it could be but the only symptom JD had for any of them were the swollen glands. JD never had any other symptoms all week. He was still eating/sleeping like normal, still acting like the crazy kid he is, and still NO FEVER! The bump on the right side actually went away, but the two on the left didn’t seem to change much at all. On Sunday morning, January 17, I completely forgot to give JD his allergy medicine before church. The bumps on the left side seemed so much bigger on Sunday night and Jeremiah and I decided to finally take him to the doctor on Monday morning. If nothing else, it would give me peace of mind! I figured I’d go in and get a different allergy medicine and we’d be good!
I got to the doctor’s office around 8:30am and actually was fortunate enough to get the head pediatrician as the doctor for our visit. I was thrilled about that because he’s so thorough and I knew we were in good hands. After examining JD’s neck he told me that something just wasn’t right. He asked me to expound on the last 10 days and any other symptoms. I told him how JD hadn’t had any other symptoms and how WebMD listed cancer as the first possible disease of swollen glands. I was kind of chuckling and said, “I haven’t even entertained that idea. I mean, sometimes I think they just put that up there first to scare people.” I wanted him to know I wasn't one of those parents who was expecting the worst. The doctor paused for a minute then said, “I don’t know if you knew or not, but I was a cancer specialist for 16 years.” He proceeded to tell me that cancer is unlikely but he wasn’t ruling it out. Then he told me it wasn’t urgent, but he recommends JD have a CT scan within the next day or two. I kept thinking, if it’s not urgent why did we have to do it in the next day or two?! He said something wasn’t right about the bumps and he wants to get a better look at them. He said if JD had a CT he’d have to be put under. He then said the only other option was to have a Fine Needle test. The doctor explained that when he worked in the cancer field a Fine Needle test was the best way to examine a mass and
determine the cause/treatment. The problem was he didn’t know if they could still do Fine Needle tests. Also, he said that most likely whatever they find will result in the bumps being surgically removed.
Here I am with my 21-month old son, facing terms like “mass, cancer, CT scan”. Not a good feeling! I didn’t know what to do. I just kept thinking “God you already know what this is and you know how to fix it! I’ve just gotta trust you!” The doctor went to call the specialist’s office and see if they could do the Fine Needle test. In the meantime, a nurse came to do a blood test on JD to test his white blood cell levels. The doctor came back in a few minutes later and said he got us worked in for the test and that JD’s blood work came back perfect. That meant that cancer most likely was not present…but that wasn’t 100% guaranteed.
I got in the car to go to the specialists office and it hit me – this is real! Something could be REALLY really wrong! I was on the phone with different family members while I drove to the specialist’s office and just kept getting more and more worked up! The more I talked about it and explained what was going on the more REAL it became and that scared me. I knew GOD was in control but I was worried about my baby!
Jeremiah met me at the specialists office around 9:45am. Then we waited! For an hour and 45 minutes we waited! Our pediatrician had told me what they would have to do to JD to complete the Fine Needle test and that most likely I wouldn’t be allowed in the room. I was dreading what JD was about to go through; but JD had no idea! He was having a blast. He got to show off in the waiting room and just soaked up the attention! What a ham!!!! We finally got called back and were put in a room. Within just a few minutes the doctor walked in and began to go over the details of the procedure. After they got everything set up they told us we were about to begin. They allowed both Jeremiah and I to stay in the room throughout the procedure. JD was placed on a body board with straps over his ankles, knees, stomach and arms while three nurses held him down. The doctor then stuck a needle in one of the bumps to numb it. He then stuck a larger needle in the bump to extract some of the tissue. JD just screamed the whole time. It was awful! I didn’t want to watch it, but I couldn’t leave him. After they extracted the tissue the nurses unstrapped him and gave him to me. Talk about heart-wrenching. JD held on so tight! The doctor explained they would examine the tissue and should have the results by that afternoon. He told us to come back around 4:30pm and they would give us the results and we would go from there.
We left the office, got some lunch, Jeremiah went back to work and I went to my brother-in-law/sister-in-law’s house. I wasn’t about to stay home alone. It was a long four hours filled with calls to friends and family keeping them posted as to what was going on. We had everybody praying because we didn’t know what we were about to be faced with. One of the pastors from our church called to pray with us and he said something in his prayer that stuck with me all day “God, we know that this isn’t a surprise to you”. It wasn’t a surprise to GOD at all! It knocked me off my feet but didn’t even make GOD flinch. HE already knew the outcome!
We headed back to the doctor’s office around 4:30pm and were taken directly to a room. The doctor came in with a huge grin on his face and said, “Great news! It’s just an infection!” Never had I been so happy to hear the word “infection”. He said they weren’t sure what caused the infection but we would need to treat that first. He has to be on stronger antibiotics, then we have to go back Thursday, January 28, for a follow-up. He said that he is concerned with why the infection bunched up in the two masses like it did. He said it could either be a cyst that got infected (that will eventually have to be removed) or it could be lymph cells that bunched together and somehow got infected (and they’ll eventually have to be removed). Right now – we just have to get rid of the infection. After that they’ll have to do more tests to determine our next course of action.
I was thrilled with the news! Yes, we still may be facing surgery and I’m okay with that. He’s a boy – he’ll love having scars! Compared to what we could have faced, this is fantastic news. Throughout the whole process Jeremiah and I both remained relatively calm. I know that is all because GOD’s people were praying for us. Most of you didn’t even know what to pray about – just to pray. I can’t thank you enough! Our GOD is an awesome GOD and I am so thankful for the grace and strength HE gave us yesterday! We still covet your prayers! The next 10 days are going to be long! Our prayer is that the antibiotics completely heal the infection and even resolve the issue so no surgery is necessary. If he does have to have surgery, that's okay too. We'll get through it. Again, GOD knows! Thank you for loving us and praying us through this! I know in comparison to some this is minor. I know that there are families with far worse medical situations. I can’t imagine what it is like for them. But this was huge to us.
GOD promises to never leave or forsake us and to never give more than we are able to handle. If you are not sure about your future and you don't know 100% sure where you will spend eternity, I ask you to meet my Savior and Lord, Jesus Christ. He will come to you, where you are - just as you are. The Bible says if we confess our sins He is faithful and just to forgive us our sins and cleanse us from all unrighteousness. If you would like to meet my GOD, I'd love to help you know for sure that you're going to heaven! Thank you again for all your love and prayers. We will keep you updated!

Love-
Jeremiah, Crista, and JD

*This was taken of my sweet boy in Sep/Oct 2009. It is one of my favorite pictures of him!

Tuesday, August 18, 2009

Bubbles Entry for I Heart Faces

This week's challenge is "Bubbles". At first I was thinking that I needed to look hard for a picture, then I remembered I had one from the birthday party I did in June. This was one of my absolute favorite pics!

Go on over to www.iheartfaces.blogspot.com and check out all the other entries! You'll be SO glad you did!

Wednesday, August 5, 2009

Fabulous Giveaway

Wow! I checked in for my daily I <3 Faces fix and found something awesome! They're giving away a Tamron lens that is incredible. I was just talking with a fellow photog friend at church last week about my need of a zoom lens that had a larger range than my current lens. We were talking about even though it's an investment in these times it's hard to put that much money out when you're not even getting enough photog business to be full-time. When I came across this giveaway I thought -"Wow! That would be such an amazing blessing!" Well, it's not in my hands. I pray I win, but I know there are other people who could use it as well. GOD knows, right?!

In the meantime, I <3 Faces is amazing. So many techniques, tips, great photographers and wonderful articles! I enjoy checking the site out for my daily 'fixes'. Go check it out too.

http://www.iheartfaces.blogspot.com/